Support For Long COVID & Chronic Fatigue

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Long COVID and Chronic Fatigue

Getting COVID-19 can be very physically draining, so it’s no surprise that getting Long COVID can (and usually does) result in chronic fatigue.

But, what does this mean and what can we do about it?

What makes Long COVID “long”

Long COVID is generally defined as COVID-19 whose symptoms last longer than 28 days, but in reality the symptoms not only tend to last for much longer than that, but also, they can be quite distinct.

Here’s a large (3,762 participants) study of Long COVID, which looked at 203 symptoms:

Characterizing long COVID in an international cohort: 7 months of symptoms and their impact

Three symptoms stood at out as most prevalent:

  1. Chronic fatigue (CFS)
  2. Cognitive dysfunction
  3. Post-exertional malaise (PEM)

The latter means “the symptoms get worse following physical or mental exertion”.

CFS, Chronic Fatigue Syndrome, is also called Myalgic Encephalomyelitis (ME).

What can be done about it?

The main “thing that people do about it” is to reduce their workload to what they can do, but this is not viable for everyone. Note that work doesn’t just mean “one’s profession”, but anything that requires physical or mental energy, including:

  • Childcare
  • Housework
  • Errand-running
  • Personal hygiene/maintenance

For many, this means having to get someone else to do the things—either with support of family and friends, or by hiring help. For many who don’t have those safety nets available, this means things simply not getting done.

That seems bleak; isn’t there anything more we can do?

Doctors’ recommendations are chiefly “wait it out and hope for the best”, which is not encouraging. Some people do recover from Long COVID; for others, it so far appears it might be lifelong. We just don’t know yet.

Doctors also recommend to journal, not for the usual mental health benefits, but because that is data collection. Patients who journal about their symptoms and then discuss those symptoms with their doctors, are contributing to the “big picture” of what Long COVID and its associated ME/CFS look like.

You may notice that that’s not so much saying what doctors can do for you, so much as what you can do for doctors (and in the big picture, eventually help them help people, which might include you).

So, is there any support for individuals with Long COVID ME/CFS?

Medically, no. Not that we could find.

However! Socially, there are grassroots support networks, that may be able to offer direct assistance, or at least point individuals to useful local resources.

Grassroots initiatives include Long COVID SOS and the Patient-Led Research Collaborative.

The patient-led organization Body Politic also used to have such a group, until it shut down due to lack of funding, but they do still have a good resource list:

Click here to check out the Body Politic resource list (it has eight more specific resources)

Stay strong!

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  • Potatoes & Anxiety

    10almonds is reader-supported. We may, at no cost to you, receive a portion of sales if you purchase a product through a link in this article.

    It’s Q&A Day at 10almonds!

    Have a question or a request? You can always hit “reply” to any of our emails, or use the feedback widget at the bottom!

    In cases where we’ve already covered something, we might link to what we wrote before, but will always be happy to revisit any of our topics again in the future too—there’s always more to say!

    As ever: if the question/request can be answered briefly, we’ll do it here in our Q&A Thursday edition. If not, we’ll make a main feature of it shortly afterwards!

    So, no question/request too big or small

    ❝My other half considers potatoes a wonder food, except when fried. I don’t. I find, when I am eating potatoes I put on weight; and, when I’m not eating them, I lose it. Also, although I can’t swear to it, potatoes also make me feel a little anxious (someone once told me it could have something to do with where they are on the “glycemic index”). What does the science say?❞

    The glycemic index of potatoes depends on the kind of potato (obviously) and also, less obviously, how it’s prepared. For a given white potato, boiling (which removes a lot of starch) might produce a GI of around 60, while instant mash (basically: potato starch) can be more like 80. For reference, pure glucose is 100. And you probably wouldn’t take that in the same quantity you’d take potato, and expect to feel good!

    So: as for anxiety, it could be, since spiked blood sugars can cause mood swings, including anxiety.

    Outside of the matter of blood sugars, the only reference we could find for potatoes causing anxiety was fried potatoes specifically:

    ❝frequent fried food consumption, especially fried potato consumption, is strongly associated with 12% and 7% higher risk of anxiety and depression, respectively❞

    Source: High fried food consumption impacts anxiety and depression due to lipid metabolism disturbance and neuroinflammation

    …which heavily puts the blame not on the potatoes themselves, but on acrylamide (the orange/brown stuff that is made by the Maillard reaction of cooking starches in the absence of water, e.g. by frying, roasting, etc).

    Here’s a very good overview of that, by the way:

    A Review on Acrylamide in Food: Occurrence, Toxicity, and Mitigation Strategies

    Back on the core topic of potatoes and GI and blood sugar spikes and anxiety, you might benefit from a few tweaks that will allow you to enjoy potatoes without spiking blood sugars:

    10 Ways To Balance Blood Sugars

    Enjoy!

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  • Body Image Dissatisfaction/Appreciation Across The Ages

    10almonds is reader-supported. We may, at no cost to you, receive a portion of sales if you purchase a product through a link in this article.

    Every second news article about body image issues is talking about teens and social media use, but science tells a different story.

    A large (n=1,327) study of people of mixed genders aged 16–88 examined matters relating to people’s body image, expecting…

    ❝We hypothesized that body dissatisfaction and importance of appearance would be higher in women than in men, that body dissatisfaction would remain stable across age in women, and that importance of appearance would be lower in older women compared to younger women. Body appreciation was predicted to be higher in men than in women.❞

    As they discovered, only half of that turned out to be true:

    ❝In line with our hypotheses, body dissatisfaction was higher in women than in men and was unaffected by age in women, and importance of appearance was higher in women than in men.

    However, only in men did age predict a lower level of the importance of appearance. Compared to men, women stated that they would invest more hours of their lives to achieve their ideal appearance.

    Contrary to our assumption, body appreciation improved and was higher in women across all ages than in men.❞

    You can read the study in full here:

    Body Dissatisfaction, Importance of Appearance, and Body Appreciation in Men and Women Over the Lifespan

    That’s a lot of information, and we don’t have the space to go into all parts of it here, fascinating as that would be. So we’re going to put two pieces of information (from the above) next to each other:

    • body dissatisfaction was higher in women than in men and was unaffected by age in women
    • body appreciation improved and was higher in women across all ages than in men

    …and resolve this apparent paradox.

    Dissatisfied appreciation

    How is it that women are both more dissatisfied with, and yet also more appreciative of, their bodies?

    The answer is that we can have positive and negative feelings about the same thing, without them cancelling each other out. In short, simply, feeling more feelings about it.

    Whether the gender-related disparity in this case comes more from hormones or society could be vigorously debated, but chances are, it’s both. And, for our gentleman-readers, note that the principle still applies to you, even if scaled down on average.

    Call to action:

    • be aware of the negative feelings of body dissatisfaction
    • focus on the positive feelings of body appreciation

    While in theory both could motivate us to action, in reality, the former will tend to inform us (about what we might wish to change), while the latter will actually motivate us in a useful way (to do something positive about it).

    This is because the negative feelings about body image tend to be largely based in shame, and shame is a useless motivator (i.e., it simply doesn’t work) when it comes to taking positive actions:

    Why Shame Only Works Negatively

    You can’t hate yourself into a body you love

    That may sound like a wishy-washy platitude, but given the evidence on how shame works (and doesn’t), it’s true.

    Instead, once you’ve identified the things about your body with which you’re dissatisfied, you can then assess:

    • what can reasonably be changed
    • whether it is important enough to you to change it
    • how to go about usefully changing it

    While weight issues are perhaps the most commonly-discussed body image consideration, to the point that often all others get forgotten, let’s look at something that’s generally more specific to adults, and also a very common cause of distress for women and men alike: hair loss/thinning.

    If your hair is just starting to thin and fall, then if this bothers you, there’s a lot that can be done about it quite easily, but (and this is important) you have to love yourself enough to actually do it. Merely feeling miserable about it, and perhaps like you don’t deserve better, or that it is somehow a personal failing on your part, will not help.

    If your hair has been gone for years, then chances are you’ve made your peace with this by now, and might not even take it back if a fairy godmother came along and offered to restore it magically. On the other hand, let’s say that you’re just coming out the other end of a 10-year-long depression, and perhaps you let a lot of things go that you now wish you hadn’t, and maybe your hair is one of them. In this case, now you need to decide whether getting implants (likely the only solution at this late stage) is worth it.

    Note that in both cases, whatever the starting point and whether the path ahead is easy or hard, the person who has dissatisfaction and/but still values themself and their body will get what they need.

    In contrast, the person who has dissatisfaction and does not value themself and their body, will languish.

    The person without dissatisfaction, of course, probably already has what they need.

    In short: identification of dissatisfaction + love and appreciation of oneself and one’s body → motivation to usefully take action (out of love, not hate)

    Now, dear reader, apply the same thinking to whatever body image issues you may have, and take it from there!

    Embodiment

    A quick note in closing: if you are a person with no body dissatisfactions, there are two main possible reasons:

    • You are genuinely happy with your body in all respects. Congratulations!
    • You have disassociated from your body to such an extent that it’s become a mere vehicle to you and you don’t care about it.

    This latter may seem like a Zen-level win, but in fact it’s a warning sign for depression, so please do examine that even if you don’t “feel” depressed (depression is often characterized by a lack of feelings), perhaps by taking the (very quick) free PHQ9 Test ← under 2 minutes; immediate results; industry-standard diagnostic tool

    Take care!

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  • Modern Friendship – by Anna Goldfarb

    10almonds is reader-supported. We may, at no cost to you, receive a portion of sales if you purchase a product through a link in this article.

    It’s a topic we’ve covered before at 10almonds: Human Connection In An All-Too-Busy World.

    Here, however, Goldfarb has an entire book to cover what we had one article to cover, so of course it’s a lot more in-depth.

    Importantly, if also covers: what if you seem to be doing everything right, and it’s still not working out? What if you’re already reaching out, suggesting things, doing your part?

    Piece by piece, she uncovers what the very many problems are, ranging from availability issues and priorities, to health concerns and financial difficulties, to challenges as diverse as trust issues and exhaustion, and much more.

    After all the hard truths about modern friendship, she gets onto equally cheery topics such as why friendships fail, but fear not, solutions are forthcoming too—and indeed, that’s what most of the book is about.

    Covering such topics as desire, diligence, and delight, we learn how to not only practise wholehearted friendship, but also, how to matter to others, too. She finishes up with a “14-day friendship cleanse”, which sounds a lot more alarming than it actually is.

    The style is interesting, being personal and, well, friendly throughout—but still with scholarly citations as we go along, and actual social science rather than mere conjecture.

    Bottom line: if you find that your friendships are facing challenges, this book can help you to get to the bottom of any problems and move forwards (likely doing so together).

    Click here to check out Modern Friendship, and learn how to truly nurture and grow your connections!

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    We don’t usually do an author bio beyond mentioning their professional background, but in this case it’s worth mentioning that the first-listed author, Dr. Leroy Hood, is the one who invented the automated gene sequencing technology that made the Human Genome Project possible. In terms of awards, he’s won everything short of a Nobel Prize, and that’s probably less a snub and more a matter of how there isn’t a Nobel Prize for Engineering—his field is molecular biotechnology, but what he solved was an engineering problem.

    In this book, the authors set out to make the case that “find it and fix it” medicine has done a respectable job of getting us where we are, but what we need now is P4 medicine:

    1. Predict
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    3. Personalize
    4. Participate

    The idea is that with adequate data (genomic, phenomic, and digital), we can predict the course of health sufficiently well to interrupt the process of disease at its actual (previously unseen) starting point, instead of waiting for symptoms to show up, thus preventing it proactively. The personalization is because this will not be a “one size fits all” approach, since our physiologies are different, our markers of health and disease will be somewhat too. And the participatory aspect? That’s because the only way to get enough data to do this for an entire population is with—more or less—an entire population’s involvement.

    This is what happens when, for example, your fitness tracker asks if it can share anonymized health metrics for research purposes and you allow it—you are becoming part of the science (a noble and worthy act!).

    You may be wondering whether this book has health advice, or is more about the big picture. And, the answer is both. It’s mostly about the big picture but it does have a lot of (data-driven!) health advice too, especially towards the end.

    The style is largely narrative, talking the reader through the progresses (and setbacks) that have marked the path so far, and projecting the next part of the journey, in the hope that we can avoid being part of a generation born just too late to take advantage of this revolutionary approach to health.

    Bottom line: this isn’t a very light read, but it is a worthwhile one, and it’ll surely inspire you to increase the extent to which you are proactive about your health!

    Click here to check out The Age Of Scientific Wellness, and be part of it!

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  • Ultra-Processed People – by Dr. Chris van Tulleken

    10almonds is reader-supported. We may, at no cost to you, receive a portion of sales if you purchase a product through a link in this article.

    It probably won’t come as a great surprise to any of our readers that ultra-processed food is—to make a sweeping generalization—not fabulous for the health. So, what does this book offer beyond that?

    Perhaps this book’s greatest strength is in showing not just what ultra-processed foods are, but why they are. In principle, food being highly processed should be neither good nor bad by default. Much like GMOs, if a food is modified to be more nutritious, that should be good, right?

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    If the book has a downside, then this reviewer would say it’s in the format; it’s less a reference book, and more a 384-page polemic. But, that’s a subjective criticism, and for those who like that sort of thing, that is the sort of thing that they like.

    Click here to check out Ultra-Processed People, and understand better what you are putting in your body!

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  • Glucose Revolution – by Jessie Inchauspé

    10almonds is reader-supported. We may, at no cost to you, receive a portion of sales if you purchase a product through a link in this article.

    While we all know that keeping balanced blood sugars is important for all us (be we diabetic, pre-diabetic, or not at all), it can be a mystifying topic!

    Beyond a generic “sugar is bad”…

    • What does it all mean and how does it all work?
    • Should we go low-carb?
    • What’s the deal with fruit?
    • Carbs or protein for breakfast?
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    Instead of dry textbook explanations, or “trust me” hand-waives, she explains biochemistry in a clear, simple, digestible (if you’ll pardon the pun) way with very helpful diagrams what things cause (or flatten) blood sugar spikes and how and why. If you read this book, you will understand, without guesswork or gaps, exactly what is happening on a physical level, and why and how her “10 hacks” work.

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    1. Eat foods in the right order
    2. Add a green starter to your meals
    3. Stop counting calories
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    5. Have any type of sugar you like—they’re all the same
    6. Pick dessert over a sweet snack
    7. Reach for the vinegar before you eat
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    She then finishes up with a collection of handy cheat-sheets and some of her own recipes.

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